A Day in the Life of Bev, Her Story, Part 17!

A Day in the Life of Bev, Her Story, Part 17!

Greetings Friends and Family: The 2020 event is our 11th annual celebration and much has changed since our last update. Thank you for being such loyal friends and supporters and for your support in this journey to cure HD! A few notes about this update: Bev is no...
Virtual/Facebook Live:  Bev’s Bootlegger Ball 2020

Virtual/Facebook Live: Bev’s Bootlegger Ball 2020

Amid the pandemic, we held a virtual ball!  Thank you to everyone who participated live with us and watched the replay following the event.  Bev and Bob were overwhelmed with the support they received that night.  We look forward to seeing you in person...