About Us

Our Mission

The Bev Hartig Huntington’s Disease Foundation was founded in 2011 as a vehicle for funding research to find a cure for Huntington’s Disease. The Foundation has a three-pronged mission to educate, fund and believe that one day Huntington’s Disease will be eradicated.

Inspired by her own diagnosis and the gradual on-set of symptoms, Bev Hartig gathered friends and neighbors to form a committee to help her fulfill her dream of creating a fundraiser to raise awareness of Huntington’s Disease and money to help find a cure. The inaugural event was held in 2010 and raised over $88,000 in a single evening. The Foundation was formed as the vehicle for awarding those monies to researchers with cutting edge approaches to seeking a cure. In the past 11 years the TBHHDF has awarded nearly $1,800,000 to Huntington’s research.

Dollars donated to Huntington's Research

Our Mission

Finding a cure and discovering treatments for Huntington’s Disease through the support of research.

How We Help

Educate

The rarity of Huntington’s Disease means not many people know about it or how devastating it can be. We aim to raise awareness, and therefore support, to enable more funding and research opportunities.

Fund Research

Our funding arm seeks out cutting-edge researchers whose aim is to discover and develop drugs that retard the progression of Huntington’s Disease. We support research that would not otherwise be funded without us.

Believe

Huntington’s Disease is a horrible illness, but we remain optimistic that a breakthrough is on the horizon. It is our strong belief that a cure will be found, and future generations will no longer suffer from this disease.

Board Members

Cindi Berry

President

Nanette Johnson

Treasurer

Shelley Lewis

Past President

Kathy Murphy

Communications

Wava Raymond

Scientific Review

Lisa Rump

Secretary

Etsa Seach

Assistant Treasurer

Learn More

What is Huntington’s Disease?

Huntington’s Disease is a degenerative brain disease that strikes in mid-life, usually between the ages of 30-40. People lose their ability to walk, talk, and even feed themselves. Even though people may live for 10-20 years with this disease, their quality of life is taken from them.

Who is Bev Hartig?

In 1998, about one year after getting married, Bev received a paralyzing phone call that her birth father had been diagnosed with HD. This meant every sibling had a 50% chance of inheriting this disease. She found out that she also carried the gene and would suffer the same tragic fate.