At a Glance

What is Huntington’s Disease?

Huntington’s Disease is a degenerative brain disease that strikes in mid-life, usually between the ages of 30-40. People lose their ability to walk, talk, and even feed themselves. Even though people may live for 10-20 years with this disease, their quality of life is taken from them.

Who is Bev Hartig?

In 1998, about one year after getting married, Bev received a paralyzing phone call that her birth father had been diagnosed with HD. This meant every sibling had a 50% chance of inheriting this disease. She found out that she also carried the gene and would suffer the same tragic fate.

How We Help

Educate

The rarity of Huntington’s Disease means not many people know about it or how devastating it can be. We aim to raise awareness, and therefore support, to enable more funding and research opportunities.

Fund Research

Our funding arm seeks out cutting-edge researchers whose aim is to discover and develop drugs that retard the progression of Huntington’s Disease. We support research that would not otherwise be funded without us.

Believe

Huntington’s Disease is a horrible illness, but we remain optimistic that a breakthrough is on the horizon. It is our strong belief that a cure will be found, and future generations will no longer suffer from this disease.

Our Mission

Finding a cure and discovering treatments for Huntington’s Disease through the support of research.

How You Can Help

Spread Awareness

Support depends on awareness—the more people know about Huntington’s Disease, the more likely we are to raise the funds necessary to support the research that will find a cure. 

Become a Sponsor

We rely on sponsorships and donations to support the research that will eventually end Huntington’s Disease for good. Click the button below to learn more about how you can help.

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Donate

Donations are tax-deductible and support cutting-edge research to find a cure for Huntington’s Disease. Click the button below to make a one-time or recurring donation.

Upcoming Events

2021 Event – The Bluffs at Conner Prairie

Inspired by her own Huntington’s Disease diagnosis and the gradual on-set of symptoms, Bev Hartig gathered friends and neighbors to help fulfill her dream of creating a fundraiser to raise awareness of Huntington’s Disease and money to help find a cure. All monies raised from the events are awarded to researchers with cutting edge approaches seeking a cure.  To date, The Bev Hartig Huntington’s Disease Foundation has awarded over $2 million to help find a cure. Our 2021 event was held at The Bluffs at Conner Prairie.   We look forward to seeing you at our 2022 event:  Saturday, April 30, 2022 at The Forum Event Center in Fishers, Indiana!  

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