At a Glance

What is Huntington’s Disease?

Huntington’s Disease is a degenerative brain disease that strikes in mid-life, usually between the ages of 30-40. People lose their ability to walk, talk, and even feed themselves. Even though people may live for 10-20 years with this disease, their quality of life is taken from them.

Who is Bev Hartig?

In 1998, about one year after getting married, Bev received a paralyzing phone call that her birth father had been diagnosed with HD. This meant every sibling had a 50% chance of inheriting this disease. She found out that she also carried the gene and would suffer the same tragic fate.

How We Help

Educate

The rarity of Huntington’s Disease means not many people know about it or how devastating it can be. We aim to raise awareness, and therefore support, to enable more funding and research opportunities.

Fund Research

Our funding arm seeks out cutting-edge researchers whose aim is to discover and develop drugs that retard the progression of Huntington’s Disease. We support research that would not otherwise be funded without us.

Believe

Huntington’s Disease is a horrible illness, but we remain optimistic that a breakthrough is on the horizon. It is our strong belief that a cure will be found, and future generations will no longer suffer from this disease.

Our Mission

Finding a cure and discovering treatments for Huntington’s Disease through the support of research.

How You Can Help

Spread Awareness

Support depends on awareness—the more people know about Huntington’s Disease, the more likely we are to raise the funds necessary to support the research that will find a cure. 

Become a Sponsor

We rely on sponsorships and donations to support the research that will eventually end Huntington’s Disease for good. Click the button below to learn more about how you can help.

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Donate

Donations are tax-deductible and support cutting-edge research to find a cure for Huntington’s Disease. Click the button below to make a one-time or recurring donation.

Upcoming Events

Latest Blogs

An Update on Bev from her Girlfriends

Several of us have been visiting Bev over the recent weeks and wanted to share our observations with you. First of all, she’s such a trooper and continues to smile and be so gracious to see her friends! She remembers the stories that we share and we often bring photos for her to see of the times when she was not confined to her wheelchair. We understand from her care-team (who are AWESOME, by the way), that she continues to need round-the-clock care. She is struggling to eat because of the inability to control her swallowing and sometimes prefers not to eat. She has gates around her bed for safety and she is strapped into her wheelchair for protection. She has difficulty keeping her shoulders and head up, and sits hunched over. Her every need is cared for, from getting out of bed, washing, teeth brushing, eating, etc. She can no longer do any of these for herself. Her care-givers and friends and family hold her cup with a straw for her to sip. She still loves her hot coffee!

In early November, the family hired IU Palliative care to help with Bev. They will be there until the end. They have updated Bev’s medication to help keep her more calm. She’s a true fighter, and understands what is happening to her body, so, it’s understandable that she’s frustrated and angry sometimes. Those of us who know her best appreciate that about our dear Bev! But, she also needs to stay calm to remain physically safe.

It’s hard to watch our once vivacious and quick-witted friend Bev go through this. Many times, we have to hold back the tears before we can turn to her with our “game face”, smile and commence with our visits! As her friends, we band together to be strong for Bev and to help support her most noble cause, to find a cure for this terrible disease. A disease none of us were familiar with until Bev shared her journey with us.

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