At a Glance

What is Huntington’s Disease?

Huntington’s Disease is a degenerative brain disease that strikes in mid-life, usually between the ages of 30-40. People lose their ability to walk, talk, and even feed themselves. Even though people may live for 10-20 years with this disease, their quality of life is taken from them.

Who is Bev Hartig?

In 1998, about one year after getting married, Bev received a paralyzing phone call that her birth father had been diagnosed with HD. This meant every sibling had a 50% chance of inheriting this disease. She found out that she also carried the gene and would suffer the same tragic fate.

How We Help


The rarity of Huntington’s Disease means not many people know about it or how devastating it can be. We aim to raise awareness, and therefore support, to enable more funding and research opportunities.

Fund Research

Our funding arm seeks out cutting-edge researchers whose aim is to discover and develop drugs that retard the progression of Huntington’s Disease. We support research that would not otherwise be funded without us.


Huntington’s Disease is a horrible illness, but we remain optimistic that a breakthrough is on the horizon. It is our strong belief that a cure will be found, and future generations will no longer suffer from this disease.

Our Mission

Finding a cure and discovering treatments for Huntington’s Disease through the support of research.

How You Can Help

Spread Awareness

Support depends on awareness—the more people know about Huntington’s Disease, the more likely we are to raise the funds necessary to support the research that will find a cure.

Follow us on Facebook and Instagram for more information.

Become a Sponsor

We rely on sponsorships and donations to support the research that will eventually end Huntington’s Disease for good. Click the button below to learn more about how you can help.

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Donations are tax-deductible and support cutting-edge research to find a cure for Huntington’s Disease. Click the button below to make a one-time or recurring donation.

Upcoming Events

Boogie for Bev: Never Miss a Chance to Dance

Boogie for Bev: Never Miss a Chance to Dance April 29, 2023 We are excited for this year’s 14th annual event, Boogie for Bev: Never Miss a Chance to Dance. As we continue in our efforts to raise funds for research we are reminded of the opportunity to engage, dance and donate each year during the annual fundraiser. So put on your boogie shoes and fluff your hair as we will look forward to seeing you all there! Click here for more information about tickets and sponsorship.  

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Latest Blogs

An Update From Bob

As we start 2023, The Bev Hartig Huntington’s Disease Foundation remains grateful and humbled by your generous support! Over this year, we have seen many changes in Bev and her battle with HD. She...

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